Hi Simon
In reverse order…
Discourse with a screen reader was interesting from the perspective of additions that are being made to the delivery of service. But not an augmentation that I have a personal need for.
HIPPA compliance equivalents are needed in every jurisdiction. The first world has defined all sorts of standards and the second and third world have adopted /adapted them for their own usage so something is needed everywhere. In fact we’re in a funny situation where things like date protection acts and GDPR are not understood by the public and used by corporations and institutions as an excuse for not doing anything they don’t want to. They’ve become a new bogey man. People are doing quite benign things which are technically illegal and they’re not doing things that would be very useful out of fear but they might be illegal.
Soon a gathering of experiential data in the sort of chronic care communities are I’m interested in will have the potential to link known but not correlated useful interventions but none of the data will have been gathered with that as a defined usage and so that genuinely useful usage will be technically illegal - perhaps practicality will intervene and people will ignore that dichotomy or contribution
The sudden outbreak of a rash of common sense nah!
Ben’s friends - omg!
Are they responsive? I think I will write to rose and CC Ben - what a board of directors!! did you read my LinkedIn article? I’m talking to a number of people in the UK about the extension of community through digital means, the integration with therapists, with therapy products that combine AI and robotics etc ben friends could be a relevant interchange. Their community on Central pain is a link I’ve already shared with friends in the stroke community !! 
Civil as a term to imply compliant to a selected set of social norms I can fully embrace. Civilised I wasn’t happy with because for example the global oil industry is civilised Christianity and Islamism are both civilised and also a major source of war-mongering, institutionalised inequity etc - it’s irrelevant diversion but are you aware of the doctrine of discovery h a mediaeval right conferred by the pope on explorers to enslave free communities around the world in the name of being civilised!?
Rephrasing
(And @robertpye this may expand the " value in a relevant currency for an individual stakeholder” point above .
Let’s try this: imagine a future history “I read the stats on a global network of servers that show a vibrant community of folk who are enjoying sharing value”
Now back casting - what of all the necessary prerequisites that were required to get to that? First of all was all the technical infrastructure, global network, servers, software, metrics gathering &metrics definition, metrics completion etc etc also there’s all the challenge in defining / knowing what vibrancy is cross something as diverse as a community, what value is in all its diversity and enjoyment is etc. there’s explicit need to recognise that different people in the community interact in different ways and value different things.
For example a community I’m in the biggest topics are " name a,… EG geographical location - that starts with the next letter in the alphabet". As far as I’m concerned there are complete waste time. I’m much more interested in topics like “what upper limb rehab techniques have you found effective” but I recognise that both threads are needed to maintain the interest of the body of people that makes a vibrant community in total.
The two paragraphs above illustrate for me at least characteristics of life cycle of a society and of its members membership and the qualities that need to be demonstrated or present
if I haven’t got to clarity for you yet ask again and I will have another attempt
And finally yes comprehension through reading is incredibly difficult!