This is my first post here, though I’ve been reading for several months.
For 15 years I’ve run a little forum in a walled garden. Our community of about 400 subscribers is for parents of children with a certain medical diagnosis and run on a listserv email list. I’d like to transition to a Discourse forum, but configuring the forum to guard confidentiality is stymieing me.
We have two primary types of posts;
Facts and science: Medical research, medical education, discussion of medical literature, explanation of the state of medical knowledge to new parents (and oldies). These posts really should be public, and should engage a much wider audience than our little group. IMHO, some of the foremost experts on this particular diagnosis participate on my little list. Identifying the poster is good.
Parental support. Discussion of a child’s symptoms, blood test results, behavior, educational difficulties, parental difficulties, familial difficulties, fears, dashed hopes, realized dreams. It is this second type of post that I want to ask you all about.
In my community it is the same people who post the facts and science who provide parental support. It is the same people who ask questions about facts and science who ask for parental support.
I’m looking for a way to provide confidentiality for the families and for these children who are being discussed in the most intimate details, while making the vast store of medical knowledge available to the internet at large.
I’ve seen this dualism on other listserv/usenet groups. Extensive medical knowledge is being shared by those who have been-there/done-that, but in a walled garden where they are safe to share intimate medical details.
Do I just tell everyone to get two different accounts? One through FB, Yahoo, etc, and another for the personal posts with a new email that gravatar won’t recognize? It just seems like a mess.
Has anyone started a discourse forum from a support group where private information had been shared? How did you balance confidentiality with the discourse openness?